Osteogenesis Imperfecta

After Warner passed away he had loads of testing done. X-rays and tissue samples helped to diagnose that Warner had Osteogenesis Imperfecta(OI), Type II. There are many different types in which survival is normal. In Type II, infants die shortly after birth. This is a skeletal dysplasia in which collagen does not properly form, some bones do not form correctly and are very brittle. In Warner's case, the cause of his death was because his ribs were extremely short, leaving little or no room for his lungs to develop. He passed away of respiratory complications, which was obvious when he was born. That is about all we know!

The chances of this happening in future pregnancies is very small. The chance that we passed OI to Warner is less than 1% (all couples have a 1% chance of birth defects), but there is a chance, and there is no way to test to see if we passed these genes to Warner or not. Yes, this is a little scary, but we trust in the Lord and also realize that the percentages are on our side. If we have another child with OI, we will then know that we did indeed pass the genes to our children, but let's just pray that doesn't happen. Then our chances of passing it to other children range from 10-50%. Details that we hope and pray we will never have to dive into!

Click Here for more information on the OI Foundation's Website