Difficult news...praying for the best!

Baby W was chit-chatting with us during our ultrasound, moving his lips all over the place! It is so fun to see him moving around in there, because I don't always feel him. I have been feeling him way more often though, which is so great! I love to feel him rolling around, getting hiccups (just once) and getting a tiny nudge here and there. He is sitting SO low right now! I have just started to have some sciatic pain, which is not fun at all! I guess I can't complain though, because I have had a pretty perfect pregnancy.

We saw Dr. R. yesterday, and he gave us the news that we o-so-didn't want to hear. Baby W's 'achondroplasia' diagnosis has been changed to a type of dwarfism called 'thanatophoric dysplasia' (which I will now just refer to as "TD"). TD is lethal in 90-95% of cases in the first few days of life. The pictures that we have really help explain it a little better.

The picture above is from Baby W's back side. His head is on the right, stomach/bum on the left. As you can see, his ribs (toward the right) are 'bowing in'. They should be more of an oval shape.

The picture above is just of baby W's mid-section. You can see the white lines on each side of him in a slight "S" shape, these are his ribs 'bowing' in, instead of out. In an average child, the baby's more of an oval shape than our little man. His stomach and head continue to grow as they should, as well as all of his organs. Unfortunately, his heart and lungs are located in the upper part of his body, within the ribs. They are also able to continue to grow, but the area that they take up is not able to house them as they get larger. Right now, I am breathing for Baby W. He is not using his lungs at all, so this doesn't pose a huge problem until he is born and tries to breath. There is no room for his lungs to expand and breath for himself. From what we understand, he should be okay until birth (at this point in time) and at that time they will try their best to assist him in his breathing. They can only inflate his lungs so far without the pressure from the ribs working against the doctors, therefore having the lungs burst. Hopefully Baby W will keep his ribs large enough to house his lungs without problems.

Baby W did show some growth, which we were very happy to see. If we see the growth stop, there is a chance that we would deliver Baby W in just 5 weeks from now. If he continues to grow, at 36 weeks, which is 9 weeks from now, we will decide whether to deliver or continue until 40 weeks. It all depends on what he decides to do in there.

We are praying to beat the odds and make it into the 5% of survival cases, but know that whatever happens we can be with our little man again after this life. Keep him in your prayers!